NTR 'patient-reported outcome'

[dillerm]

Label: patient-reported outcome

Definition: A data item that is about a report by a patient concerning a healthcare intervention. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

Contributors: https://orcid.org/0000-0001-9625-1899, https://orcid.org/0000-0001-9990-8331, https://orcid.org/0009-0003-7246-1252

[dillerm]

@wdduncan could we simplify this to be "A healthcare outcome that is reported by a patient" (keeping the second sentence)?

[wdduncan]

Suggestions to definitions from OHD meeting:

• A data item that is about a patient’s health that comes directly from the patient. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

• Add https://www.cancer.gov/publications/dictionaries/cancer-terms/def/patient-reported-outcome as definition source.

• Add skos:exactMatch http://purl.obolibrary.org/obo/NCIT_C95401

• Add has_broad_synonym PRO (this an often used abbreviation)

[dillerm]

This all looks good! Should we mention in a comment or in the definition that a healthcare intervention need not be what the outcome is referring to?

[wdduncan]

Yes. I think that would be a helpful comment.

cc @addiehl